Another walk is upon us
Another year has passed by without any changes to Ethan's vision. Thank the good Lord above! He is spending his time being a typical crazy three year old. :-) A few weeks ago we attended the Vision Walk kick off dinner and as usual it was nothing short of amazing! A young lady who has LCA, which is another form of a retinal disease which causes blindness, talked about how she had received gene therapy treatment and is now able to see things she never even imagined were possible! She can now see snow flakes, rain drops, and the stars! Imagine for a second that you couldn't see those things. They seem like something so small and simple, but what joy you get from seeing them! Haven't you ever sat inside on a snowy winter day and enjoyed watching the snow fall? It's these tiny things that we, as sighted folks, take for granted. She received a gene therapy treatment (which was no doubt in part funded by the Foundation Fighting Blindness) that saved and restored her vision! This is our dream for Ethan. This is why we do what we do. This is why we participate in this Vision Walk every year, and raise money selling T-shirts. We are very excited for the walk this year and hope to see as many, if not more, of our friends and family coming out to support us! Your support means so much. It means that we are not in this alone.
As some of you may or may not know, we are currently pregnant with baby #2. As you can maybe imagine, this is another journey which will test our faith. We don't know what we are having yet. I wouldn't mind having another boy, but if we do, the fear will always be in the back of my mind (until we can get him tested), will he have the gene as well? This is something very personal that I struggle with, as I am the carrier of the gene and so consequently if my child has it, it's because I have given it to him. I believe that God works in mysterious ways and that he has a very specific purpose for Ethan and any other child of mine who might inherit this gene from me. But as a mother, who wants to protect her children, it still stings a little. Either way, we hope for nothing less than just a healthy pregnancy and a healthy baby, with or without the gene. A girl would be nice though. ;-)
8/25/2018 04:19:29 am
The Weaver Family is bold and strong <3
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I am the proud mommy of Ethan! My husband Jason and I decided to start up this web page as a way to stay connected with our friends and families and share our story!